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Buddies Walking Together for Down Syndrome

Posted in: Family // 571 Comments

Buddies Walking Together for Down Syndrome
Down Syndrome Association of Jacksonville gets the First Coast out on their feet to raise awareness

By Michelle Gilliam

There are more than 400,000 Americans living with Down syndrome today. The Down Syndrome Association of Jacksonville strives to create positive experiences for patients to encourage their health. They offer a variety of services including physical, occupational and speech therapy along with social activities to get the community active and working together to assist the cause.

Through a variety of First Coast organizations and programs, children with Down syndrome can participate in physical, occupational and speech therapy to help their development. The state of Florida had once offered all three therapies to newborns without charge, but budget cuts have forced parents to choose only one. When implemented by patients before three years of age, these therapies are considered early intervention and have proven to lay a better foundation for a person’s cognitive, physical, behavioral, social and self-regulatory abilities. The staff of the Down Syndrome Association of Jacksonville knows that each therapy is vitally important and that is why they offer subsidized financial help with both speech and physical therapy.

Physical therapy focuses on gross motor skills and is designed to help people with Down syndrome learn skills such as sitting, standing and walking. Occupational therapy, known for teaching fine motor skills, helps people with Down syndrome button clothes, write and eat. Speech therapy involving older children concentrates on the development of expressive communication through conversation. For younger children, speech therapy focuses on feeding, providing opportunities to increase muscle strength in the mouth and ease future communication skills. The DSAJ’s parental outreach programs include assistance with general medical questions, education and the emotional support needed upon learning of a child’s diagnosis.

The DSAJ also hosts socials for children and adults with Down syndrome. From birth to age five, families can join the Lil’ Stars and participate in social and educational programs including gym time, therapy sessions and conferences. The Shining Stars (Ages 6 – 12) and the Teen Group (ages 13 – 17) also offer fun outings around the area and sports programs including soccer, basketball and cheerleading. The Young Adults (ages 18+) participate in dances and health programs.

To fund the organization’s diverse programs, the DSAJ hosts an annual Buddy Walk, the group’s largest fundraiser of the year. This event brings in the majority of the organization’s annual funds. Last year’s DSAJ Buddy Walk was one of the largest and most successful in the United States, earning Jacksonville the National Down Syndrome Society’s “Buddy Walk of the Year.”

November 9, 2013 is the 11th annual Down Syndrome Association of Jacksonville Buddy Walk. From 11:30 a.m. to 2 p.m., thousands will fill the Seawalk Pavilion in Jacksonville Beach to enjoy amazing rides like a pirate swing pendulum, two sky jumps, a Ferris wheel, bounce houses and carnival games as well as music and numerous food vendors. At 2 p.m., Action News Anchor Dawn Lopez will signal walkers to start a one-mile walk along the beach. Each participant sets up a fundraising webpage in advance of the walk to take donations to aid the DSAJ’s mission. Additionally, 100% of the proceeds from all food vendors at the Buddy Walk will go directly to the DSAJ.

Last year, more than 4,500 people participated in the DSAJ’s Buddy Walk, raising more than $200,000 for the organization. This year, the DSAJ hopes to raise $225,000. People can register for this year’s walk by visiting “www.dsaj.org”:http://www.dsaj.org and clicking on “Register Today” under Current Events and Buddy Walk.


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